My eldest, Amy, as been battling with a condition called HSP (Henoch-Schonlein purpura) since she was 8 years old and has nearly died a couple of times from it. When she gets a virus such as a throat infection, her HSP kicks in and it makes her very ill. She bleeds internally into her bone joints and has twice bled into her stomach. Although it is a mainly a children's illness, at 14 she should have grown out of it, but alas no and now she seeming to be getting ill quicker and quicker each time. This is why I am going grey early! lol The photo accompanying this blog post is the rash that HSP comes up with. It's not nice - Amy has had it like this 3 times and the pain is excruciating.
After a week of being poorly and her feeling quite sad about it, she sat down today and wrote a 'Letter to the Universe' and added it to Facebook for the world to see. Today she took a stand against the bullies at school, against people in her life who want it all in their terms and most importantly, against her illness. This is what she wrote:
"AS YOU PROBABLY KNOW, I'VE BEEN ILL THIS LAST WEEK, AND WAS ILL 7 WEEKS AGO - BOTH TIMES WITH TONSILLITIS. MOST OF YOU KNOW, I HAVE HSP (IF YOU DON'T KNOW HERE'S WHAT IT IS - HTTP://WWW.DRGREENE.COM/QA-ARTICLES/HENOCH-SCHONLEIN-PURPURA/). UNFORTUNATELY ANY TYPE OF INFECTIONS, SUCH AS TONSILLITIS, CAN CAUSE IT TO FLARE UP. THIS HAPPENED BOTH TIMES WITH ME, SO INSTEAD OF SIMPLY TRYING TO FIGHT OFF A THROAT INFECTION, I'VE BEEN DEALING WITH MY HSP FLARING UP AS WELL. WHEN SUFFERING WITH HSP, AN ADULT IS SAID TO BE ANYONE OVER THE AGE OF 12, AND THIS IS WHEN THINGS CAN GET VERY DANGEROUS, AND CAN BE FATAL. SINCE I'VE BEEN GETTING ILL MORE FREQUENT, I'VE REALISED THAT I CANNOT WASTE ANY MORE TIME. SO TO ANYONE WHO IS LISTENING, INCLUDING THE UNIVERSE, I AM NOT GOING TO WASTE TIME AND I AM GOING TO DO THE THINGS THAT I WANT TO DO. THIS INCLUDES FINALLY PASSING MY SINGING EXAM WHICH WAS MEANT TO BE TODAY. THIS INCLUDES PASSING ALL MY OTHER EXAMS WITH GREAT MARKS (A/A* WOULD BE NICE!) I WILL FINALLY STAND UP FOR MYSELF TO ANYONE WHO WANTS TO CONTROL ME OR TRY AND PUT ME DOWN. I WILL NOT HIDE WHO I AM - I AM DIFFERENT AND VERY PROUD OF IT. I WILL ACHIEVE ANYTHING IN LIFE THAT I WANT, AND I WILL BE ANYTHING THAT I WANT TO BE. SO I WILL BECOME A TEACHER AND TRAIN EVEN MORE DOWN THE SPECIALIST ROUTES OF EITHER FORENSIC SCIENCE OR ASTROPHYSICS. I WILL HAVE A FAMILY AND BE A GOOD MUM. I WILL NOT SUBMIT TO EMOTIONAL BLACKMAIL ANYMORE. I WILL NOT LET PEOPLE PLAY MIND GAMES WITH ME. I WILL NO LONGER LET PEOPLE PHYSICALLY OR MENTALLY BULLY ME. "
"I AM A WITCH. I AM GINGER. I AM FEMALE. I AM A FREAK OR A WEIRDO. I AM POSH. I AM TOO SENSITIVE. "I AM ALL THOSE THINGS - BUT I'M STRONG AND I AM AMY. I AM NOT WEIRD - I'M JUST LIMITED EDITION. "SO THIS IS WHAT I WILL DO. I WILL OVERCOME HSP ONE DAY, AND OVERCOME ANYONE WHO WANTS TO PUT OBSTACLES IN MY WAY. I CAN OVERCOME ANYTHING, AND IF I CAN DO SOMETHING - I WILL DO SOMETHING. AND IF YOU ARE READING THIS AND THINKING THAT IT IS ABOUT YOUTHEN IT MOST LIKELY IS."
I am always proud of my girls, but tonight, I am *extra* proud
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